The
California Birth Defects Monitoring Program provides
rigorous scientific data to answer questions about birth
defects including the ultimate question: what
causes them?
COMMUNICATING RESULTS IS PART OF OUR MISSION
We've made a commitment to provide data and findings
to those who need themother scientists, health
care professionals and the public.
Public health impact of birth defects.
Policymakers, health officials and clinical service
planners can use this data to predict services needed,
allocate resources, identify high risk populations
and target public health interventions. Because
birth defects are an often overlooked problem, documenting
occurrence can help the public appreciate the tremendous
financial and emotional impact involved.
Identifying risk and protective
factors. By comparing interview responses between
mothers of children with and without birth defects,
scientists can determine factors that may contribute
toor protect againstabnormal development.
Most risk factors cause relatively subtle statistical
differences and can be detected only in large-scale
studies like ours.
Rapid response to public
concerns. If an alert clinician or concerned community observes
a sharp rise in local birth defects, the Program
can mobilize resources to quickly assess and address
concerns about possible environmental causes. However,
the small numbers in most communities mean this
type of investigation can detect only very powerful
agents (those causing jumps at least 10 times higher
than the expected rate).
Here are a few practical examples of how Program data is used:
A county infant mortality review panel
observes anencephaly (absence of the brain) occurring
frequently among perinatal deaths6 cases in the
previous year. Is this too many? Noting an increase in
illicit drug use, local physicians wonder if there's a
link. The county has 25,000 births a year. Learning the
statewide anencephaly rate is 0.2 per 1000 livebirths,
they determine their actual case count6 infantsis
not statistically different from the 5 cases expected.
Recognizing that neural tube defects are
higher in Latino infants, local March
of Dimes Foundation chapters develop Spanish-language educational
materials as part of their campaign to promote folic acid
use during pregnancy.
A children's hospital contemplates adding
a craniofacial clinic, but wonder how many clients will
need treatment. Their service area has 20,000 births per
year. Based on a rate of 1.6 per 1000, they expect 32
infants will be born with oral clefts each year.